Sorry it has taken me so long to get an update posted. It has been a difficult month and a half for me. It all started on Mother’s day, then I had my 6 month anniversary of finding out I had a brain tumor, then on May 30th, I had my last vaccine, then my birthday, and then my baseline MRI, then school got out for summer. So why was all of this difficult for me? It was all the passing of time. Any reminder of time passing has been hard on me. I’m grateful to be here, but still have the “3 to 8 years” in the back of my head. There has been a lot of emotions this month for me and a lot of tears shed. This year has just flown by. I wish time would slow down for a few years so I could enjoy it more.
Sean and I are still attending our Brain Tumor support group, which has been great and really helped a lot. Although last week we learned that one of the people we really cared about, whose name happened to be Joshua (just like our son) has been put on hospice after fighting for his life. He is only 31 years old and has been fighting since he was 8 with a recurrence about every 10 years. Please keep his family, wife and 1 year old daughter in your prayers.
Also, dear friends of ours, the Children’s ministry pastor at our church was having some vision problems and went in to the doctor and found out that he has a brain tumor. He will be having surgery tomorrow (6/21). Please keep Jason, his wife, Natty, and their 2 sons in your prayers. It breaks my heart to see this happen to him and his family.
We will be leaving on July 1st for our “Bucket List” RV trip across the United States. Looking forward to some family time and great memories. I will be writing a blog this summer about our journey and will be posting pictures of the places and people we visit. I will do one more update on this site with the information for the blog. I’m still trying to figure out what to call it and how to set it up.
Sorry if this update has been a downer. I did get good new from my doctor. My last MRI showed no growth of the tumor. I will be getting another one in 3 months and every 3 months for the rest of my life to monitor any future regrowth.